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I actually don’t care what you call it – but I live with pain and fatigue and I want some pain management; access to clinical trials; a knowledgeable GP; bulk-billing neurologists and rheumatologists;  a job that is flexible and that I can do from home for 8 hours a week that does not aggravate my condition; and more compassion than blame for the way I have “ended up” in this life.  My name is really Judy but it does not matter and it is not needed to help to build public and medical awareness of something that could even be spreading unnecessarily by sexual contact and our very own blood supply.  My name is not needed to deliver some comfort to chronically ill battlers who just want to know that they are not alone.  But I will add my name to any petitions that are needed to get CFS, ME, fibromyalgia and irritable bowel syndrome recognised as severely disabling conditions rather than psychological problems.

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