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September 7, 2016 / zzirf

The way things are going, it may be the only report from the Australian Senate

https://www.yumpu.com/en/embed/view/DeETS1CbyLGFY0Zd

August 6, 2016 / zzirf

Silent Signs You Have Lyme Disease

Learn more about the hard-to-detect symptoms of Lyme disease that doctors and blood tests often miss.

Sourced through Scoop.it from: www.rd.com

August 6, 2016 / zzirf

High cholesterol ‘does not cause heart disease’ new research finds, so treating with statins a ‘waste of time’

Cholesterol does not cause heart disease in the elderly and trying to reduce it with drugs like statins is a waste of time, an international group of experts has claimed.

Sourced through Scoop.it from: www.telegraph.co.uk

Statins have some pretty nasty side effects so why would you take them if they don’t work?

Cholersterol levels are something that fluctuate as the body sees fit and when it is in recovery, cholesterol levels may be higher than the “so-called” safe limit but they are high to compensate for other problems so taking statins is going to interfere with the body trying to do its own job.  

 

The real cause of heart disease is inflammation not cholesterol but I can’t find the reference just now.  I am sure it is bookmarked in Evernote somewhere.

Borrelial infections can be one cause of inflammation so that if this was the cause in you, then you should be taking antibiotics not statins!!!!

August 6, 2016 / zzirf

One striking chart shows why pharma companies are fighting legal marijuana

New research shows a dramatic drop in painkiller prescriptions after medical marijuana laws are passed.

Sourced through Scoop.it from: www.washingtonpost.com

I could have told you this but you can read it for yourself.

July 2, 2016 / zzirf

Paralysis and PACE

This is a repost, not mine but the way my legs have been behaving lately and because of my mobility fears it seems appropriate to hear about how it is [not] going to be treated if it happens to me.

I’m dictating this to Google lying down so the grammar Mike be a bit off. that is an example of what I mean which I’ll leave in for the comedy value, comedy is probably much needed…………..I’m thinking about Whitney Defoe and those of you who have put up with this level of incapacity for years. Is this me now? I have no idea how to process that prospect………

At some point a pretty young woman in a green top comes over. At last it’s a doctor. I’ve lost track of time but I think six hours since the paralysis came on.

6 hours paralysis before I see a doctor

Read More: Paralysis and PACE

May 26, 2016 / zzirf

Go on, have a cry!

http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html

May 20, 2016 / zzirf

Fibromyalgia Pain Traced in Study to Disturbances in Rhythmic Brain Waves

Thalamocortical dysrhythmia lies at the heart of many chronic pain disorders.

Read More

July 7, 2015 / zzirf

Crohn’s Disease again or something else?

A bit more personal update on my life over the time I have been mostly away from this blog for:

I firstly wrote about it here: http://www.crohnsforum.com/showthread.php?p=875538&posted=1#post875538

Yes, I still have fibro flares.

ME/CFS improved when I was treated for Lyme Borreliosis with a year’s worth of antibiotics. During which time unusual psychiatric problems arose.  But I was physically so much better.  Not home-bound.  I had my bad runs but they were short.

I went from being 53kg to 82kg between the end of the agitated activity (psychiatric herx) phase and this new obese phase of my life but I was still able to schedule in walks with my friend.  I was taking Effexor and I went from worrying about everything to not even being nervous to go to the dentist.  You might say those pills work!  You could say the effect might have been a bit extreme because I don’t worry about the housework enough.

Health started to deteriorate very, very slowly but not so often in that fluey feeling kind of way.

And then I turned 60

At first it was hives for two months which turned out to be an allergy to egg white

My holiday medical in a strange shopping centre unveiled high blood pressure and high blood sugar.  The beta blocker helped with the blood pressure but it went away again by itself.  But I could see that my heart rate (HR) was too high.  Other’s noticed too but not my doctor.  I had monitored HR for at least a year when I had an HR monitor back  when I was really sick and breathless.  It was often very low but would go high, as in too high, when I stood up.  I assumed it was POTS and the beta blocker back then helped it.  Somewhere between then and now something has changed.  My tachycardia is consistent even throughout the night in bed.  I’m sure nobody cares.  And now, my blood pressure can be lowered by simply lying down for 20 mins. Standing up, even sitting upright elevates it by enough Hg to consider another form of orthostatic intolerance.  But it is not top priority.

I was diagnosed with diabetes mellitus type 2 fairly recently but I knew the diagnosis was coming because of many blood tests by now and I altered my diet as I guessed it should be.  I gave up sugar in my drinks and finding it hard I added cream to coffee as a substitute.  I swapped a cereal breakfast for a cooked meat and egg breakfast and I had already given up bread to try to lose weight.  That surely did not work but it saved a lot of heartburn and reflux. I was eating a lot more fat.  It seemed to be going fine and I even started losing the craving for sugar even with my naughty relapses into the biscuit and cake world.  I think I had started to lose weight until I had to stuff myself full of carbs for 4 days in preparation for a glucose tolerance test.  I would have gone back to that diet if you can call it that; instead I started having stomach and bowel problems which made eating pretty difficult.  I reckon I am losing weight again now because of it.  I have also cut back on the anti-depressant a little but I am strongly affected by withdrawal syndrome so it is a very long process.

So I am leaving you at the current point in time where I am learning to use a glucose machine and prick my finger while trying to discover if the current month-long run of stomach problems which seem like gastroparesis and bowel problems which seem like Crohn’s are going to be diagnosed.  Just don’t go to Caloundra Hospital if you are in so much pain that you think you will pass out.  They will take away your ambulance trolley, send you back into the public waiting room and make you use the public toilets until the blood comes which was 4 hours and then they will give you a buscopan and I must not forget the lecture about not being able to be treated in Emergency because Crohn’s disease (although pronounced cured or a phantam of someone’s imagination) in me has been long-standing and therefore something every day and she reminded me (the doctor on duty who did not even send anyone to check on me during my prolonged stays in the bathrooms) that in fact, I did not pass out.  I assume they mean that I can only go to hospital during a bowel attack if I actually do pass out.  I asked to go home in the end.  Being cold in the hospital trying to lie down across several seats was adding hell to torture.  My home was not hell.  I had blankets and a bed.  And a clean toilet with softer toilet paper.  I thought Emergency Departments were supposed to have most of those things and accept people who are nearly in another dimension because of painful spasms.

When I was in private health insurance, the private hospital I went to a over a couple of decades ago insisted that I should go to hospital to get something strong like pethadine for the pain.  Caloundra Public hospital obviously does not treat bowel cramps (that leave you sore for a week after, and that make you wonder if you might die).

Anyway, my doctor told me to go to hospital next time and I did.

Now I am being tested for all sorts of things.  I wonder if I will get a diagnosis this time.  Last time one doctor suggested gall stones and the other suggested gastro.  So I leave you without any results and a totally messed up diabetes diet.

February 6, 2013 / zzirf

Misdiagnosed with Fibromyalgia and CFS for many years… Just another Lyme Story

I have also been diagnosed with Chronic or Late Stage Lyme Disease which is often a cause of fibromyalgia, chronic fatigue syndrome, Myalgic Encephalomyelitis, Sarcoidosis, Multiple Sclerosis and on and on. Lyme disease is called “the great imitator” because it does mimic so many other chronic diseases.

I am currently undergoing antibiotic treatment but it is too early for me to tell for sure whether the treatment is working. However, despite a lot of reactions to being on the antibiotics, I am finding that the post-exertion malaise I have suffered with is markedly reduced right now.

I am not the lady in the video. The video owner believes that her Fibromyalgia and CFS are mis-diagnoses whereas I tend to believe that they are conditions that can be triggered by long-term Lyme Disease or one of its co-infections.

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